[Scirehab-forum] Spinal Cord Injury Support & Information Group meets August 16, from 12:30 to 1:30 pm

Greetings subscribers:   Individuals with spinal cord injuries and their family members and caregivers are invited to attend the next Spinal Cord Injury Support and Information Group, which will take place:   ·         Thursday, August 16, from 12:30 to 1:30 pm ·         Harborview Medical Center (4-West Patient & Family Room, across from the nurses' station).    This is not a therapy group, but rather an opportunity to share stories and experiences, ask questions and get real-life answers. You can also just listen to fellow members of the spinal cord injury community.   Monthly Meetings at Harborview Medical Center:   ·         3rd Thursday of each month ·         12:30 to 1:30 pm ·         4-West Patient & Family Room (across from the nurses' station)     For questions or information, please call 206-616-8568.

 

[Scirehab-UW] New SCI Forum Video - "Community Mobility: Getting Where You Want to Go"

Dear Northwest Regional Spinal Cord Injury System Subscribers,   The SCI Forum presentation “Community Mobility: Getting Where You Want to Go,” which took place on June 14, 2011 at the University of Washington Medical Center, is now available for viewing on our website at http://sci.washington.edu/info/forums/reports/transportation_2011.asp.     Learn about the different accessible transportation options available for people with disabilities in the greater Seattle metropolitan area, including buses, light rail, Access, DART and Bus Rapid Transit. Jodi Connolly, MA, CTRS/R of Harborview’s “Getting There” Transportation Resource Center and Amanda Bryant of First Transit discuss these services as well as additional programs that can help you learn how to use the transportation system, plan your trips, and feel comfortable traveling around the community independently. Helpful resources, travel tips and information about volunteer transportation and wheelchair accessible taxis are also provided. Please give us your feedback after watching the video. Just click the "two-minute survey" link on the forum page, or go to https://catalysttools.washington.edu/webq/survey/csalzman/26614.   Did you miss a past forum? We now have 34 SCI Forum videos on topics related to living with SCI that you can watch online at http://sci.washington.edu/info/forums/forum_videos.asp.   *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244 csalzman@uw.edu

 

[Scirehab-UW] Caregivers Sought for National Spinal Cord Injury Health Information Needs Study

Dear Northwest Regional Spinal Cord Injury Subscribers: Here is a message from the Model Systems Knowledge Translation Center, which works with all of the SCI Model Systems in the U.S. such as ours to deliver current, high-quality health information to individuals with spinal cord injuries and their caregivers and health care providers.   The Model Systems Knowledge Translation Center (MSKTC) is recruiting individuals over 18 who are the primary caregivers of someone who sustained a spinal cord injury. Participants will engage in a phone interview to better understand caregivers’ health information needs.  Participants will be compensated $20. If you are interested, please call Deeza-Mae Smith at 202/403-5127 or email msktc@air.org for more information.   Don’t forget to follow the Northwest Regional Spinal Cord Injury System on Facebook and Twitter!   **************************** Cynthia Salzman Northwest Regional Spinal Cord Injury System University of Washington, Box 356490, Seattle, WA 98195 206-685-3999; csalzman@uw.edu; http://sci.washington.edu

 

[Scirehab-forum] Caregiver Stress & Support Brown Bag Lunch Forum

Dear Northwest Regional Spinal Cord Injury Subscribers:   We wanted to let you know about this free event coming up soon in Seattle that may be of interest to individuals who are primary, unpaid caregivers for individuals with disabilities.   King County Caregiver Support Network Brown Bag Lunch Forum: Caregiver Stress & Support Services   Tuesday, July 31, 2012 12 noon–1:30 p.m. City Council Chambers, Seattle City Hall 700 Fourth Avenue, Downtown Seattle   If you routinely ... ·         Bring food to an adult friend or family member ·         Listen to and reassure them ·         Drive them to appointments ·         Help them with chores ·         Pay their bills ·         Run errands for them ·         Help with yard work ·         Fix their leaky faucets ·         Organize their medications so they can be safe   …then you are a caregiver, and you are probably under a lot of stress!   Fortunately, help is available. Learn about resources available to family, friends, and neighbors who help others remain living in their own homes.   Hear about services — coaching, counseling, and more — that help unpaid primary caregivers provide better care while maintaining their quality of life.   For more information, email Lisa Herbold at Lisa.herbold@seattle.gov.   Hosted by Councilmember Nick Licata, the Seattle Human Services Department, and the Advisory Council on Aging & Disability Services.   **************************** Cynthia Salzman Northwest Regional Spinal Cord Injury System University of Washington, Box 356490, Seattle, WA 98195 206-685-3999; csalzman@uw.edu; http://sci.washington.edu

 

[Scirehab-forum] Support and Information Group Meets July 19 at 12:30 pm

Greetings subscribers:   Individuals with spinal cord injuries and their family members and caregivers are invited to attend the next Spinal Cord Injury Support and Information Group, which will take place:   ·         Thursday, July 19, from 12:30 to 1:30 pm ·         Harborview Medical Center  (4-West Patient & Family Room, across from the nurses' station).    This is not a therapy group, but rather an opportunity to share stories and experiences, ask questions and get real-life answers. You can also just listen to fellow members of the spinal cord injury community.   Monthly Meetings at Harborview Medical Center:   ·         3rd Thursday of each month ·         12:30 to 1:30 pm ·         4-West Patient & Family Room (across from the nurses' station)     For questions or information, please call 206-616-8568.

 

 

 

[Scirehab-UW] New SCI Forum Video - Power Wheelchair Mobility

Dear Northwest Regional Spinal Cord Injury System Subscribers,   The SCI Forum presentation “Power Wheelchair Mobility,” which took place on November 8, 2011 at Harborview Medical Center, is now available for viewing on our website at http://sci.washington.edu/info/forums/reports/power_wc_skills_2011.asp.   Learn the skills you need to successfully navigate your power wheelchair in a variety of situations so you can more fully participate in the activities you enjoy. In this presentation, physical therapist Dave Colescott of Harborview Medical Center provides practical tips and guidelines for learning power wheelchair skills, starting with proper positioning and progressing to maneuvering safely in a variety of environments, including rain, snow, crossing tracks and climbing obstacles. Please give us your feedback after watching the video. Just click the "two-minute survey" link on the forum page, or go to https://catalysttools.washington.edu/webq/survey/csalzman/26614.   Watch all 33 videos on topics related to living with SCI at http://sci.washington.edu/info/forums/forum_videos.asp.   *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244 csalzman@uw.edu

 

 

[Scirehab-forum] SCI Support and Information Group Meets June 21 at 12:30

Greetings subscribers:   Individuals with spinal cord injuries and their family members and caregivers are invited to attend the next Spinal Cord Injury Support and Information Group, which will take place:   ·         Thursday, June 21, from 12:30 to 1:30 pm ·         Harborview Medical Center  (4-West Patient & Family Room, across from the nurses' station).    This is not a therapy group, but rather an opportunity to share stories and experiences, ask questions and get real-life answers. You can also just listen to fellow members of the spinal cord injury community.   Monthly Meetings at Harborview Medical Center:   ·         3rd Thursday of each month ·         12:30 to 1:30 pm ·         4-West Patient & Family Room (across from the nurses' station)     For questions or information, please call 206-616-8568.

 

 

[Scirehab-UW] SCI Update Newsletter Spring 2012

Dear Subscribers:          The Spring 2012 issue of the SCI Update newsletter has been posted on our website at:               http://sci.washington.edu/info/newsletters/12_spring.asp.   Contents: ·         My Shoulder Hurts! My Wrist Aches! Upper Limb Pain in Spinal Cord Injury Many individuals with SCI develop arm, shoulder, wrist, hand, back or neck pain after SCI. Dr. Deborah Crane, rehabilitation physician at Harborview Medical Center, discusses causes, treatments, and ways to prevent this common, debilitating problem. ·         New remodel…new independence Larry Mohrman has tetraplegia (quadriplegia) and is able to live independently because his home was remodeled with his specific needs in mind. This article includes interior and exterior photos of his home before and after the remodel. ·         SCI Forum: Ultralight Wheelchair Skills: From Rehab to Real World Learn the skills you need to successfully navigate your manual wheelchair in a variety of situations and environments so you can more fully participate in the activities you enjoy. Physical therapist Elisa Smith explains how to perform important wheelchair skills and shows videos of individuals with SCI demonstrating wheelies, going up and down curbs, taking stairs, and more ·         Literature Review: 12 abstracts of medical journal articles on SCI topics Read about recent research findings on sexual function, pressure ulcers, electrical stimulation, and other topics related to spinal cord injury research. ·         SCI Forum reports and videos you may have missed: o   Everyday Nutrition for Individuals with Spinal Cord Injury o   Osteoporosis in Spinal Cord Injury o   Management of Pain in Spinal Cord Injury o   Management of Urinary Problems Caused by Spinal Cord Injury   *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244; Email: csalzman@uw.edu

 

 

 

[Scirehab-forum] SCI Forum, Tuesday, June 12 at 7:00 pm

Dear SCI Forum subscribers:   Announcing the next SCI Forum:   When:         Tuesday, June 12, from 7:00 PM – 8:30 PM Where:       South Campus Center, Room 316                       University of Washington                       1601 NE Columbia Rd., Seattle, WA 98195                       For directions, go to http://sci.washington.edu/info/directions_forum_SCC.asp.   Topic:          On the Road Again: Driving after Spinal Cord Injury Driving can give a person tremendous independence after SCI. Being in control of your transportation may make life a little easier and help reconnect you with activities that make life fulfilling and enjoyable. More people with SCI can drive than you might think, but getting back behind the wheel can be a complicated process. At this forum you will learn what it takes to return to driving, how to find vehicles that might work for you, and some options for potential funding. Melissa Patopea, OTR/L, will start the evening with a talk about the University of Washington’s Driving Rehabilitation Program, which evaluates individuals with disabilities for driving potential, determines what vehicle and which types of equipment best suit them, and provides instruction and practice in the use of adaptive driving equipment. Then we will hear from several individuals with paraplegia and tetraplegia (quadriplegia) as they explain how they chose the vehicles they currently drive, discuss their equipment and modifications, and share videos showing them “on the road again.”   For more information, please visit the SCI Forum website: http://sci.washington.edu/info/forums/schedule.asp   Download the printable flyer:  http://sci.washington.edu/info/forums/6-12%20flyer.pdf    Participate in research: UW studies seeking volunteers with spinal cord injuries are listed at http://sci.washington.edu/projects_and_research/participate.asp     *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244; Email: csalzman@uw.edu

 

 

 

[Scirehab-UW] New SCI Forum Video - Ultralight Wheelchair Skills: From Rehab to Real World

Dear Northwest Regional Spinal Cord Injury System Subscribers,   The SCI Forum presentation “Ultralight Wheelchair Skills: From Rehab to Real World,” which took place on November 8, 2011 at Harborview Medical Center, is now available for viewing on our website at http://sci.washington.edu/info/forums/reports/wc_skills_2011.asp.   Learn the skills you need to successfully navigate your ultralight manual wheelchair in a variety of situations and environments so you can more fully participate in the activities you enjoy. In this video, physical therapist Elisa Smith, DPT of Harborview Medical Center provides practical tips and explanations for learning and perfecting wheelchair skills, including wheelies for curbs and maneuvering in small spaces, on gravel roads, up and down hills, and more. Wheelchair users with spinal cord injuries are shown demonstrating several of these skills. Please give us your feedback after watching the video. Just click the "two-minute survey" link on the forum page, or go to https://catalysttools.washington.edu/webq/survey/csalzman/26614.   We now have 32 videos on a variety of topics related to living with SCI that you can watch online at http://sci.washington.edu/info/forums/forum_videos.asp.   *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244 csalzman@uw.edu

 

 

[Scirehab-forum] SCI Information and Support Group Meets May 17 at 12:30 pm

Greetings subscribers:   Individuals with spinal cord injuries and their family members and caregivers are invited to attend the next Spinal Cord Injury Support and Information Group, which will take place:   ·         Thursday, May 17, from 12:30 to 1:30 pm ·         Harborview Medical Center  (4-West Patient & Family Room, across from the nurses' station).    This is not a therapy group, but rather an opportunity to share stories and experiences, ask questions and get real-life answers. You can also just listen to fellow members of the spinal cord injury community.   Monthly Meetings at Harborview Medical Center:   ·         3rd Thursday of each month ·         12:30 to 1:30 pm ·         4-West Patient & Family Room (across from the nurses' station)     For questions or information, please call 206-616-8568.

 

 

[Scirehab-forum] SCI Forum, Thursday, May 17 at 7:00 pm

Dear SCI Forum subscribers:   Announcing the next SCI Forum:   When:         Thursday, May 17, from 7:00 PM – 8:30 PM                        Note—This forum is on a Thursday, not the usual second Tuesday of the month. Where:       South Campus Center, Room 316                       University of Washington                       1601 NE Columbia Rd., Seattle, WA 98195                       For directions, go to http://sci.washington.edu/info/directions_forum_SCC.asp.   Topic:          To Walk or Roll: The Controversy Over Walking and Research After SCI By Michael Boninger, MD, University of Pittsburgh   “Will I ever walk again?” This is frequently the first question a patient with a new spinal cord injury asks. However, over time the focus on walking often fades and other issues that impact daily living move to the top of the wish list. Is there peril if individuals with SCI and researchers focus on walking too much? Where should we be putting our scant SCI research dollars? Our special guest speaker, Michael Boninger, MD, examines this complex issue from the standpoint of both a dedicated physiatrist who has worked with SCI patients for over 20 years and a prominent researcher seeking solutions to the many problems caused by these injuries. Dr. Boninger is professor and chair of the PM&R Department at the University of Pittsburgh, where he also serves as the medical director of the Human Engineering Research Laboratory and director of the SCI Model System. Please join us for what promises to be a thought-provoking discussion of a controversial issue.   For more information, please visit the SCI Forum website: http://sci.washington.edu/info/forums/schedule.asp   Download the printable flyer:  http://sci.washington.edu/info/forums/5-12%20flyer.pdf    Participate in research: UW studies seeking volunteers with spinal cord injuries are listed at http://sci.washington.edu/projects_and_research/participate.asp     *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244; Email: csalzman@uw.edu

 

 

[Scirehab-forum] SCI Information & Support Group Thursday April 19, 2012 at 12:30 PM

Greetings subscribers:   Individuals with spinal cord injuries and their family members and caregivers are invited to attend the next Spinal Cord Injury Support and Information Group, which will take place:   ·         Thursday, April 19, from 12:30 to 1:30 pm ·         Harborview Medical Center  (4-West Patient & Family Room, across from the nurses' station).    This is not a therapy group, but rather an opportunity to share stories and experiences, ask questions and get real-life answers. You can also just listen to fellow members of the spinal cord injury community.   Monthly Meetings at Harborview Medical Center:   ·         3rd Thursday of each month ·         12:30 to 1:30 pm ·         4-West Patient & Family Room (across from the nurses' station)     For questions or information, please call 206-616-8568.

 

 

[Scirehab-forum] SCI Forum April 10, 2012 at 7:00 pm

Dear SCI Forum subscribers:   Announcing the next SCI Forum:   When:         Tuesday, April 10, from 7:00 PM – 8:30 PM   Where:       South Campus Center, Room 316                       University of Washington                       1601 NE Columbia Rd., Seattle, WA 98195                       For directions, go to http://sci.washington.edu/info/directions_forum_SCC.asp.   Topic:          Protecting your shoulders & staying active after spinal cord injury   If you push a wheelchair or use crutches for walking, your shoulders are working much harder than they were designed to do and can easily be damaged over time. Your shoulders are essential for basic skills such as transfers, pushing a wheelchair, lifting objects and completing activities of daily living. How do you stay independent and active while avoiding shoulder pain and injury? Discussion tonight will focus on techniques and exercises for preserving and protecting your shoulders to minimize injury, decrease pain, increase strength, and maintain use of your shoulders for the long haul.   For more information, please visit the SCI Forum website: http://sci.washington.edu/info/forums/schedule.asp   Download the printable flyer:  http://sci.washington.edu/info/forums/4-12%20flyer.pdf    Participate in research: UW studies seeking volunteers with spinal cord injuries are listed at http://sci.washington.edu/projects_and_research/participate.asp     *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244; Email: csalzman@uw.edu

 

 

[Scirehab-UW] New SCI Forum Video: Travel after Spinal Cord Injury: Finding Your Comfort Zone

Dear Northwest Regional Spinal Cord Injury System Subscribers,   The SCI Forum presentation “Travel after Spinal Cord Injury: Finding Your Comfort Zone,” which took place on March 8, 2011 at the University of Washington Medical Center, is now available for viewing on our website at http://sci.washington.edu/info/forums/reports/travel_2011.asp   Are you interested in travel but not sure how to manage with a spinal cord injury? Whether your goal is to vacation in France, go to Disneyland or visit family across the country, it is still possible to travel and have a great time doing it. In this video, several individuals with spinal cord injuries share their wisdom and lessons learned about traveling domestically and abroad. A travel agent who specializes in clients with disabilities and also has tetraplegia (quadriplegia) discusses trip planning and know-before-you-go essentials. Whether by land, air or sea, there are more travel options available for individuals with spinal cord injury than ever before. Watch this video for encouragement, inspiration, and practical information about traveling with SCI.   Please give us your feedback after watching the video. Just click the "two-minute survey" link on the forum page, or go to https://catalysttools.washington.edu/webq/survey/csalzman/26614.   We now have 31 videos on a variety of SCI-related topics that you can watch online at http://sci.washington.edu/info/forums/forum_videos.asp.   *     *     *     *     *     *     *     *     *     *     *     * Cynthia Salzman, MHA Public Information Specialist Northwest Regional Spinal Cord Injury System Department of Rehabilitation Medicine University of Washington, Box 356490, Seattle, WA 98195 Phone: 206-685-3999; Fax: 206-685-3244 csalzman@uw.edu